Day: September 16, 2024

My 21-Year-Old Daughter Was Not Supposed To Live This Long. Here’s How I Keep Us Both Going.My 21-Year-Old Daughter Was Not Supposed To Live This Long. Here’s How I Keep Us Both Going.

“There are no treatments, no cure. DNRs and wills are in place. They have been for years, as any moment she could be taken from us.” Original source: https://www.huffpost.com/entry/mother-daughter-rare-disease-siod_n_66e1e207e4b000d8c534eb9a